Anyone lived w/ obstetric brachial plexus injury for years

This forum is for discussion about adults with Erb's Palsy / Obstetric Brachial Plexus Injuries.

Moderators: TNPIModerator2, TNPIModerator1, Contact, Chicago BPI Community

Anyone lived w/ obstetric brachial plexus injury for years

Postby cristina » Thu Apr 27, 2006 11:41 am

I'm a 26 year old female that has lived w/ a brachial plexus injury all her life? Because of my upbringing nothing was ever done about my injury and now I have seeked medical advice fromDr. Nath and hopefully will have surgery, I just want to know if there is anyone else out there that has lived with such injury as I have that would like to share their story. :)
cristina
 
Posts: 1
Joined: Thu Feb 16, 2006 11:35 am
Location: San Antonio, TX

Postby Komarov » Mon May 01, 2006 10:39 pm

Hi, Cristina.
I'am 22 year old male Russian student with brachial plexus injury.
I have not evere done surgery. I want to know your story.
Write to PM.
Komarov
 
Posts: 1
Joined: Sun Apr 30, 2006 1:52 pm

Postby cody4bc » Sat Jul 29, 2006 11:15 am

Hello all,

I am writing in response to your post in February. I have lived with a brachial plexus injury all of my life. I am twenty-one years old. I have had two operations, both relatively unsuccessful, though. I had a bicep lengthening operation done when I was about seven. My bicep tendons were lengthened, but after a few years the contractures reformed because the use of my arm was limited in such a way that I could not strengthen the muscle on my own.

I had my last operation about six years ago. It was an attempt to re-lengthen my bicep. My hope was that since I was older, and had gained some ability due to age, that I would be able to strengthen the muscle, and prevent the contractures from reforming. The operation, however, was a complete failure. The doctor was unable to lengthen my bicep because he was afraid that my arm would be paralyzed at my side if he did so. After that I had decided to give up.

About five months ago, though, I found Dr. Nath's website online, and I became interested in the possibility of being able to have some what of a normal arm again. I have been corresponding with his office frequently for the past few months, and I am scheduled to have Dr. Nath's Mod Quad surgery next month on August the 15th.

In retrospect, I am kind of glad that my last surgery was a failure. Despite the fact that it was a huge waste of money, if it hadn't of been a failure the possibility of maybe achieving a more normal left arm would not exist. As I was only aiming to have my bicep lengthened, the same thing would have occurred in the years after the second surgery that occurred after the first. The contractures would have inevitably reformed because the muscles in my upper arm would have still been imbalanced.

My previous surgeons knew little if anything about brachial plexus injuries. They did not realize that in order for me to make use of my bicep muscle, and prevent the contractures from reforming, it would be best for them to operate on my shoulder because that is the area primarily affected by brachial plexus injuries.

In talking to Dr. Nath, (and other brachial plexus specialists of course because as a result of my last disappointment I have vowed to do my research thoroughly) it is clear to me that I was being operated on by individuals who in all honesty had no clue what they were dealing with.

I do not really know what to expect next month. I do not know if I should go in feeling like it will be a miracle procedure and my arm will be fixed for good, or if I should just hope for the best. To me, though, any improvement, and I am sure you would agree, would be a miracle. I think I would be completely happy with some improvement if complete normalcy is unattainable. I have spoken with some of Dr. Nath's past patients. Some of them say that the Mod Quad surgery really didn't help them much. The majority, however, say that it helped them immensely. I hope to be in the majority.

I do not know your stories, but I would like to. I am willing to listen. I assume, though, that yours is not much different from mine or other individuals who have grown up with obpi. I am sure you have been made fun of, called names, stared at, pitied, questioned, gawked at by airport security, etc. Yet, I am even more certain that your stories are unique and interesting because they are your own.

Feel free to drop me a line anytime. If you are planning on having surgery, or if you already have, tell me about it.

Best,

Cody
cody4bc
 
Posts: 1
Joined: Wed Jul 26, 2006 11:24 am
Location: Boston

Thank You!

Postby bkabka » Sun Jul 30, 2006 8:22 pm

I just wanted to thank you for your story. I have a 2 year old daughter with OBPI, she had ModQUad with Dr. Nath 3 weeks ago. We are hoping that she can have as much normalcy as possible. I frequently wonder, though, how this will affect her in the future. I have never met or heard the story of anyone over the age of 7 with this injury. I hope that your surgery goes well. And for the others of you, I hope that you find what you are looking for. We aren't sure yet the success of Kairi's surgery, we aren't seeing much yet, but she is still weak. It's only been three weeks. However, regardless of the results for her, I do believe that Dr. Nath is wonderful. If anyone can help you I am positive it is him. Please keep us posted on your situation. I would love to hear from you all again.
bkabka
 
Posts: 27
Joined: Sat Dec 17, 2005 10:24 pm

cody4bc

Postby hudocrunk2 » Mon Jul 31, 2006 11:07 am

Thank you for sharing your story on the forum. My wife and I have a son with a brachial plexus injury. He is one year old. Dr. Nath performed the mod quad on him with great results. I realize that his situation is much different than yours due to age, but I beleive Dr. Nath is the best man for the job. I hope his skill will provide you with positive results. Once again thank you for sharing your story, we wish you the best.
hudocrunk2
 
Posts: 17
Joined: Mon Jun 26, 2006 2:19 pm
Location: wichita, kansas

Postby Chris Weldon » Wed Sep 06, 2006 8:58 am

Christina:

I was in a auto accident at age fifteen and lost the use of my right arm. I just turned 43 so for the last 28 years I have lived with the use of one arm. I am battling with my insurance company for an opportunity to see Dr. Nath who has said he could help me. I had an appointment August 25 but my insurance company would not approve and sent to another Dr. who has since said he couldn't help me.

Tell me about yourself

Chris
Chris Weldon
 
Posts: 2
Joined: Tue Aug 01, 2006 10:17 am

Insurance Battles

Postby bkabka » Fri Sep 15, 2006 7:32 pm

We had lots of trouble getting our insurance to ok treatment with Dr. Nath. He is not "in-network" with any companies. You just have to keep pushing. Any info that you can get (letter form Dr. Nath, letter from other doc stating that he can't help you, list of Dr. Nath's credentials, info about this kind of injury, etc.) can help. It did us. Once the ins. co. realized that noone really specializes in this, and how involved an injury like this is, they may be mor willing to help. We went ahead with all plans, surgery and all, put it in God's hands. We got a call just a couple days before we flew to TX telling us the ins. co. would cover. Such a relief!
bkabka
 
Posts: 27
Joined: Sat Dec 17, 2005 10:24 pm

Re:Anyone lived with Brachial Plexus Injury for years...

Postby houndedinkc » Mon Sep 18, 2006 7:17 pm

I am 39 years old (Female) & have had Erb's palsy in my right arm since birth (resulting from obstetrical injury). I have managed pretty well physically but have always wondered if some of my general lack of coordination might be due to this condition. Particularly since statistically I think I was supposed to be right handed [my mother is naturally lft. , my father, all of my aunts & uncles(both sides of family) & 3 of my grandparents were nat. rt. , my brother is nat. lft. & I use my lft.(& am bio. related to all family listed) ]. This may seem strange and far fetched but I even sometimes wonder if the severe depression I suffer from (which I find much more disabling than my restricted arm functioning), could have some bizzare neurological link with the BPI (or my brain's having to adapt as a consequence of it (having to use my lft hand etc))
houndedinkc
 
Posts: 1
Joined: Mon Sep 18, 2006 6:13 pm

Lived with Erbs Palsy all my life!

Postby Fatima83 » Tue May 29, 2007 9:40 pm

Hi All,
I am a 23 year old girl living in Australia. Erbs Palsy for me is something that I have put up will all my life - due to my upbringing, nothing was ever done and I have come to a point where I really want something done about it now. I actually didn't know I had erbs palsy until I was around 18(bizaar?). I have pain everyday! On my left shoulder, elbow & arm.
I have never met anyone who in in a similar situation as myself and it actually brought tears to my eyes when I read your stories - You don't feel so alone when you know there are other people going to a similar thing.
I would love to know more about everyone. I am looking into surgery and will be emailing Dr Nath my video & EMG.
I have mixed feeling about all this but don't want to sit back anylonger..

Love to hear back from you. God bless

Fatima :)
Fatima83
 
Posts: 1
Joined: Thu May 24, 2007 9:38 pm
Location: Sydney-Australia

Postby Archeree » Thu Nov 03, 2011 10:10 am

Hey All
I'am 22 year old male Russian student with brachial plexus injury
Archeree
 
Posts: 1
Joined: Sat Oct 08, 2011 12:26 am

Postby willmc » Wed Jun 13, 2012 4:57 pm

HUMMMM, guys I have been watching and I have not yet to see anyone's story to compare to my story yet as far as AGE is concerned. I would like to know your reactions so please reply to my story. Well here goes. I have lived with erbs palsy all my life and I have graduated high School with this condition. I had mod quad surgery with Dr Nath a few weeks ago in May. After the surgery I became very upset with myself because of not knowing about Dr Nath sooner. The surgery went very well and I start Physical Therapy Friday and it will become even better. The same day of surgery Dr Nath asked me to raise my right arm above my head and I did, I was floored. I can raise my right arm above and behind my head now. I think that I did well healing giving my age of 45. LOL can you believe that at 45 I am like a kid with a new toy. I cant wait for the shoulder tilt surgery. It can only get better. THANK YOU DOCTOR NATH I LOVE YOU!!!!
May Dr. Nath live a long, happy, and healthy life under the eyes of Gods angels.
:D :) :o 8)
willmc
 
Posts: 1
Joined: Tue Jun 05, 2012 5:46 pm
Location: Florida


Return to Adult Obstetric Brachial Plexus Injury

Who is online

Users browsing this forum: No registered users and 0 guests

cron

User Control Panel

Login

Who is online

In total there are 0 users online :: 0 registered, 0 hidden and 0 guests (based on users active over the past 5 minutes)
Most users ever online was 159 on Fri Oct 26, 2018 7:06 am

Users browsing this forum: No registered users and 0 guests